"On August 29, 2007 Jonathan Guy Russo was born to parents Jason and Jen and big brother Jace. He was a happy healthy baby and a typical little boy whose favorite things were Thomas the Train, Oreo cookies and being home with his family. At 18 months old, Jonathan started having headaches. Doctors said that any number of things could be causing them. As he got older, the headaches became worse. On March 3, 2011 Jonathan woke up with a severe headache that no medicine could alleviate. We brought him to the emergency room at Children's Hospital and after a CT scan; he was diagnosed with a type of Brain tumor called a Craniopharyngioma. This type of tumor only occurs in 1: 1,000,000 people. There is little research for this type of tumor but what we do know is that it is formed in utero and affect the pituitary gland. Children are typically diagnosed with a Craniopharyngioma between the ages of 5 and 10 years old. Jonathan was just 3. After being diagnosed, his only option was surgery to remove the tumor. This very invasive surgery was scheduled for a week and a half later on Monday, March 14th. Complications arose during Jonathan's surgery and he never left the intensive care unit. On Wednesday, March 16, 2011 Jonathan left us here on earth and entered into heaven. He became "Our Angel." Jonathan continues to live through our thoughts and prayers. Through organ donation, Jonathan was able to save four different lives. Although we prayed for a miracle to heal him, in the end we realized that Jonathan was our miracle. Please join me in the fight against brain tumors by making a donation to my fundraising campaign to support the National Brain Tumor Society."
Yesterday we attending the Jumping for Jonathan Fundraising Campaign. There were excellent foods, auctions, prizes and games! To be able to support something so important was an amazing feeling. I hope one day we can find a cure. And I also had the honor to meet the mom and big brother of little Jonathan. Peyton had a wonderful time at a wonderful cause and we look forward to next year.
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